In all your ways submit to him and he will make your paths straight... Proverbs 3:6.
I just have to share the most profound moment that I have had in a long time... For the past couple of days my mind and heart have been weighed down with worry and fear... When I read about child abuse, bullying, frustrated parents trying to get their child included in this world that is sometimes not that accepting of our children my heart will hurt.. So Dillon and I took a walk...
Dillon maybe said ten words the whole time and he was so much at peace while he followed the cord walk. We walked and I prayed.. And then I looked up and saw this.. It literally stopped me... God's light was shining on Dillon. It was within that moment that I felt the most indescribable amount of peace.. It was a warm blanket of love that just wrapped around me.. And I saw the lighted path before Dillon.. I was reminded that we are never alone.
It was a great reminder that there is no path to0 difficult for us to walk because God is with us and before us paving a path that leads to Him... I wonder how many of Dillon's angels were in this picture that I couldn't see...
I would like for you to think about one word before you consider entering our son's world...
Why do you want to spend time with my son? Is it to gain experience because you are considering becoming a professional within the special needs community? Do you have aspirations of one day becoming a special education teacher or an autism therapist? Or have you been asked by a teacher to think about organizations that serve the less fortunate that you could volunteer your time to? Perhaps earn those volunteer hours that you are required to meet in order to graduate? Do you need something inspirational such as befriending a special needs child to look good on your college resume? Or perhaps hoping that one of your moments will be captured and shared gaining National attention on social media? Or maybe it’s your parents that have approached you with the idea of spending time with someone that has it worse off than you hoping to see your attitude and perspective on life change for the better.
If one of these reasons are why you would like to join my son’s world than please spare my husband and I, my son, and his brothers the heartache and walk away… My son is not a tool to be used. He is not an experience to be made. He is a human being with a heart and a soul. He won’t know your intentions but rather he'll think that you truly want to be his friend. He's not aware that he'll only see you for only 40 hours until your volunteer time is up, but rather, he'll hope to be with you longer as the friendship nurtures and grows. He won't know that you'll be studying his behavior so you can add it to your research, but rather, he'll think that you truly want to get to know him as the person he was created to be.
If you have a longing to be needed and truly want to help someone in need, than PLEASE join us in our world. If at times you feel that you have nothing to give or that no one sees you, than PLEASE join us in our world. If you feel misunderstood, left out, and need a friend than PLEASE we need you in our world.
As Dillon’s mother I have seen firsthand the impact God has made working through my son to reach those that need His love and care. Dillon has been a mirror reflecting God’s grace. He has worked through Dillon to open the hearts of the hurting replacing their pain with his healing love. Through Dillon’s vulnerabilities God has made us more aware of our own vulnerabilities in which compassion, empathy and understanding is shared. I have seen the lives of so many teens change because of the time that they have spent with Dillon and the life lessons that have been learned. Some have shared with me the impact these lessons have made which have touched my heart more than words can say.
I am truly sorry if my thoughts have hurt you in any way. That was not my intention in sharing my heart with you. My hope is that you know how much of an impact you can make in the lives of those you meet by simply being a friend. You have so much to give! We all have an opportunity each day to use our words and actions to build one another up and to befriend those in need.
We all need each other!
What an amazing day today was..
Today I had the opportunity to share my son's life with a group of wonderful educators within CESA 3 in Fennimore, Wisconsin.. Sharing our journey with others is such a blessing. And at the end of our sharing Dillon came in to the conference room and handed out his business card to every single person in the room!! It was priceless to see. Dillon has so much joy in his heart and he shares it with every one he meets.
Today I spent the afternoon at the beach with my boys, Colin and Dillon. And it was so touching watching Colin teach Dillon how to stretch out the blanket from side to side so we could sit and enjoy our picnic lunch. Encouraging words were expressed, "Good job Dillon! Thank you Colin!" And for a moment it was just the three of us.. Just the three of us enjoying a sunny afternoon on a small stretched out blanket watching the car ferry come in, counting the seagulls on the beach, and allowing no worry or care to enter our world.. We all need to slow down and create moments like this.. It's within these moments that we can truly be grateful for every blessing in our lives..
Good morning! When we received Dillon's diagnosis of Fragile X, limits were automatically put on him via professionals and society in general.. I, his own mother, thought he had limits based on what I read, what people said, and how I felt.. I was wrong.. They were wrong.. Our Heavenly Father is the ONLY person that knows our limitations and He promises us a future filled with hope, peace, and love. No limits on His Grace.... Have a great day!!
Today, while making heart shaped cookies with Dillon, I was reminded that we can all share love with one another. And it can be as simple as making a heart shaped cookie and giving it away to someone who needs to be reminded that they are loved. I invite you to join Dillon and I this week to give some love away to someone in need. It's an opportunity we have everyday!
As Dillon's Mom, I have treasured the encouragers that have walked along side me and have encouraged me to never give up and to keep moving forward. The journey of a special needs parent can be an isolated and lonely one and yet it is full of unexpected blessings along the way.